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IndoUSrare
Herndon
Virginia
USA
0 reviews
| Physical Address |
13687 Neil Armstrong Ave Herndon Virginia 20171 |
| Phone | +1 540-239-0465 |
| click to email | |
| Website | |
| https://www.indousrare.org/ | |
Business/Community Description |
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The Indo US Organization for Rare Diseases (IndoUSrare) is a dedicated independent non-profit organization that supports individuals affected by rare and underserved medical conditions of Indian origin across the USA, India, and globally. By fostering collaborations among researchers, healthcare providers, and patient communities, IndoUSrare aims to enhance the development of diagnostics and therapies through comprehensive education, advocacy, research, and grant programs. Our mission emphasizes patient-centric initiatives in alignment with the FDA's patient-focused drug development (PFDD) paradigm, including the Diversity Patients Alliance Program, tech-enabled Patients Concierge, Corporate Diversity Advisory Council (CDAC), research programs, and national and international conferences, ensuring extensive support and engagement for affected individuals. |
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